Nota: Inscrições até 27/05/2012
Informações:
* Registar aqui: http://www.msud-support.org/index.php?option=com_jforms&view=form&id=4&Itemid=118
Date: June 28-30, 2012
Location: Embassy Suites Philadelphia Airport
9000 Bartram Ave, Philadelphia, PA 19153
Phone 215-365-4500
Fax 215-365-3195
www.philadelphiaairport.embassysuites.com
Agenda:
Thursday June 28th - 7:00PM-9:00PM Registration/Reception (drinks and light snacks provided)
Friday June 29th - Buffet Breakfast 6:00AM-8:00AM (for those staying at the Embassy Suites)
General Session 8:00AM-4:30PM
Saturday June 30th - Buffet Breakfast 7:00AM-9:00AM (for those staying at the Embassy Suites)
General Session 9:00AM-4:00PM
Confirmed speakers and topics thus far include:
Mario Cabrera-Salazar MD - Genzyme Corporation, Framingham, MA
Gene Therapy
Gerald Downes PhD - University of Massachusetts, Amherst, MA
MSUD in Zebrafish
Ira Fox MD - Children’s Hospital of Pittsburgh, Pittsburgh, PA
Hepatocyte Transplantation
Dianne Frazier RD, PhD - University of North Carolina, Chapel Hill, NC
Evidence - Based Guidelines for Nutritional Management
Susan Hutson PhD - Virginia Tech, Blacksburg, VA
MSUD Mouse Model
Brendan Lee MD, PhD - Baylor College of Medicine, Houston, TX
Phenylbutyrate Study
George Mazariegos MD - Children’s Hospital of Pittsburgh, Pittsburgh, PA
Liver Transplantation
Holmes Morton MD - Clinic for Special Children, Strasburg, PA
Medical Management
Emilie Muelly MD/PhD Program - Penn State Hershey College of Medicine, Hershey, PA
Neurocognitive Effects of MSUD
Kristen Vallieu PhD - University of Pittsburgh, Pittsburgh, PA
MSUD Mouse Model
William Zinnanti MD, PhD - Stanford University Medical Center, Palo Alto, CA
Potential Use of Norleucine and Gabapentin in MSUD
Cost:
We are pleased that once again the MSUD Family Support group is able to host the conference without cost to families, professionals, or exhibitors. (Annual dues will be accepted)
Meals:
Complimentary drinks and snacks will be provided for all attendees on Thursday evening 6-28. Breakfast is included in the cost of the room rate for all those staying at the Embassy Suites on Friday 6-29 and Saturday 6-30. Those not staying at the Embassy Suites will need to provide their own breakfast on those mornings. Lunch on Friday 6-29 and Saturday 6-30 will be provided free of charge to all attendees. Dinner is on your own on 6-28 through 6-30. Low protein food options will be available Thursday evening 6-28 during the reception and for breakfast and lunch on Friday 6-29 and Saturday 6-30.
Attire:
Comfortable, casual attire is appropriate for the entire symposium
Child Care Activity Room:
There will be a room available with activities/entertainment for children and, hopefully, we will have several volunteers to assist the children.
Plan a family vacation:
The Eastwick train station is within walking distance of the hotel and provides access to downtown Philly and all of its wonderful sights. Or in conjunction with the symposium, plan a family vacation to other Eastern US cities.
Don’t forget to complete and send back your registration form and make your hotel reservation!
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